Picking up from the last post, we headed out of the hospital and had just signed discharge papers about 10 minutes ago. We drive away and within 5 minutes Jake is crunched over in his seat, crying, saying his head hurts and that he can't breathe because of the pain. John and I are just looking at each other as I'm driving like deer in the headlights! What is this??? The biggest thing the doctor said to watch for was headache as it could be a sign of bleeding. While the doctor was going over that part, we both knew it was far fetched....but back to real time and he's screaming about his head. For those that don't know Jake, he doesn't cry because of painful things that most children or adults would cry about. He never once shed a tear while getting poked with needles, he has broken bones before and never cried, doesn't cry when he has been spanked, I mean NOTHING. He cries, but not because of physical pain. So John and I were a little freaked out to say the least.
My grandmother lives pretty close to the hospital and we were not even to her house when all this was going on, so we decided to drive there and get Jake out to see what was going on. We arrived and I got Jake out of the car. John took him in and I called the number they had just given us as we left. In the meantime, Jake was whaling that he was in pain and his head hurt. I could not believe he was really crying this hard over it. So, we get back in the car as I'm waiting on the nurse. She answers and hears him in the background and could not believe it either. She told us to come back to the hospital but to go to the back to the ER and let them know he was just discharged. Apparently he can't go back up to the floor since he was discharge, and we understood that, but this had literally been 15 minutes!
We get to the ER quickly and I have to carry Jake in. He is laying over my shoulder, holding his head, moaning and not talking. I knew something was wrong. We walk in and I told them he was just discharged and go through the whole thing. A nurse gets us right back and when she sees how low his platelets are, they bypass vitals and go to a room. Within seconds there were more than five doctors/nurses in the room with us. Hooking Jake up to machines as he just laid there. This was the most scared I had been during the past week. Everything was happening so fast, Jake was not himself at all and as fantastic as the hospital and doctors were, I was sooooo ready to be back home with both boys! We told the doctors that literally 15 minutes prior, Jake was dancing with the nurses going down the elevator. They looked at me like I had 3 heads!! The ER doctor ordered a CT and we went right up for that. By this point, Jake was more with it and not crying. About 5 minutes later they had the results, went over them with the doctor from the floor we were just on and both confirmed there was no bleeding. Praise God!!
The ER doctor said it was just a bad headache and that he most likely had never had one before and didn't realize the pain. He also said the headaches are very severe with the IVIG treatments and that Jake could also have fever and nausea. We knew this but he had been a model patient up until this point. While we were getting another stack of discharge papers from the ER, he told us how lucky we were. "We don't see many kids come in with such low numbers without something being wrong...." Not word for word, but basically what he said. The whole time we were in the hospital, they don't talk about 'what ifs' or anything else; it is just here is your child, these are the facts we know, this is what we are going to do. ER doctors are different and it really put it in to perspective how close we were to a very, very bad situation.
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