STEROIDS

     We started steroids Thursday the 24th.  We had to give Jake a dose in the morning and one at night.  All in all it went pretty well.  He was rather hyped up Saturday but we went out for the day and had three birthday parties to go to, so I was sure he would get worn out.  We barely made it through the first one and Jake passed out in the car back to Lampasas.  He missed the next one but was able to get caught up on sleep.  Monday was the last dose and he had the hardest time going to sleep.  He was still awake at 2 or 2:30 AM!! I even had him lay with me to try and go to sleep but he just moved, tossed and turned and just could not stay still.   He was not tired at all so I let him just play in his play room.  I wasn't sure if it had anything to do with the steroids or not but I was glad we were done with them.  I'm not big on any of us taking medicine.  I'm not against it by any means but I hate when any of us are in a position where we have to take medicine.  

     Monday I called a sweet lady that also has a son with ITP.  She had contacted me while I was in the hospital and we had text off and on throughout the weeks, but I finally was able to call her.  I tried a couple of other times, but I would get nervous or just emotional.  I'm not sure why since I didn't even know her, but maybe I didn't want to hear bad things?  Anyways, I called her and it turns out our kids were at the same VBS in town!  We were able to meet up while we picked up the kids and talk for a short while.  Her son had never met anyone with ITP so it was so sweet when she introduced her son to Jake.  Even though both of us obviously don't want anything wrong with our boys, it was comforting to know someone local who had already been through the things we are currently going through.  Apparently, there is nobody even close in location to us with this blood disorder.  :(